Grant's Journey

PRE FONTAN CATH SCHEDULED: March 11th I certainly hope that he qualifies for the surgery. I will be glad to get that worry out of my mind. I jump every time the phone rings. I will be glad when the surgery is scheduled too.

If you recall reading a few posts ago, we had a cardiology appointment on the 15th. I have to say, I was actually impressed with Dr. Williams, our cardiologist. This time, we walked in and he knew what was going on, and both Kyle and I felt a LOT better about it. Good thing. We need to have some confidence in him for what is coming up. I had mentioned earlier that I wanted to have a 6-12 month plan in mind so that I had time to plan our lives. We definitely got a plan, but not quite on the time frame I had in mind. After seeing Grant's awesome growth (27 lbs on their scale, 27.7 on our doctor's scale), and hearing about some of the symptoms he has (low sats, incredible clumsiness due in part to low sats, blueness, etc.) he told us that it sounded like Grant's body was telling us it was time. I figured we would hear as much, but I still anticipated that we would be looking at sometime late in the summer so Grant could grow and meet that *magic* 30 lb mark that is so desirabl...

In an attempt to recreate last year's CHD photo shoot (go HERE for a blast from the past!) I sat Grant on our bed just after his bath in hopes of capturing some precious images. He paid attention for about 15 seconds, but I was able to get a few of these great shots, so I am happy. I am now remembering how different life was last year with a baby who couldn't run away and climb off the bed! I take these pictures each year around Valentines day in order to spread some awareness of Congenital Heart Disease (CHD). In reality, by joining us and following along with Grant's journey, you are already very much aware of the impact of CHD's in our lives. 1 in 100 babies will be born with some type of heart defect. Many are not as serious as Grant's and go undetected sometimes for YEARS (think of the stories you hear about high school athletes going into cardiac arrests during games for no apparent reason). Many women do not get great prenatal care and miss important screeni...