Grant's Journey

Grant has been out of the cath lab for a few hours now and we are feeling incredibly lucky for how everything went. Grant happily played in the surgical waiting room until it was our turn. He didn't complain about being hungry at all which was such a blessing. Dr. Gray did his cath and was very sweet taking Grant back and helping him feel comfortable. He reminded us of all the risks and told us his plan was to avoid his Fontan conduit as much as possible to try and minimize more clots escaping. His plan was to check pressures in his heart first and then depending on how things looked, he would inflate a balloon inside the Gortex shunt to temporarily occlude the hole. If it held and Grant could handle the pressures in his heart, he would place a device to close the fenestration. This will prevent future clots from escaping, but it will also remove that pop off valve for high pressures across his shunt. We met with Dr. Gray about 3 hours after we left Grant. He had a big smile on h...

It has certainly been a while since I have updated on Grant's blog and for those who don't know us personally, I apologize! I intended to do yearly updates on Grant since this has been his medical blog, but we have been too busy enjoying life! I am dusting off the blog so I can keep our family and friends aware of what has been happening recently. Two weeks ago, Grant and his brother Miles were sitting in the tub getting their hair washed when Grant started panicking and yelling that he was spinning and everything was spinning. He then slumped to one side and we watched the left side of his face droop and his left side go limp. His speech was slurred and then his right side went limp as well. We immediately got Miles out of the tub and attended to Grant. He began vomiting over and over and was looking very dusky blue/gray. By the time we were able to quickly rinse out his hair and get him to our room, his heart rate was in the 150's (high for him), but his sats were in no...